Indiana has a long history of health information exchange, shaped with the help of the Regenstrief Institute and the Indiana Health Information Exchange.
This history began in the 1970s, when the Regenstrief Institute created the first electronic health record system. In 1993, Regenstrief created the Indiana Network for Patient Care to enable data sharing between emergency departments of hospitals serving Indianapolis – perhaps the first “health information exchange” in the country.
This data-sharing clinical repository was formed from the alliance of the five largest hospital groups in Indianapolis and supported by the Regenstrief Institute.
A neutral steward of data
“As the value of the INPC became apparent and EHRs became more common, Indiana researchers, business owners and hospitals met and determined the INPC needed a neutral steward of the data with a business focus,” explained John Kansky, president and CEO of the Indiana Health Information Exchange.
“In 2004, the IHIE was founded as a separate 501(c)(3) not-for-profit organization to securely manage and grow the INPC,” he continued. “To this day, the INPC remains at the core of how to fulfill our mission – to improve health and healthcare through information exchange.”
The INPC is the largest inter-organizational clinical data repository in the nation, according to Kansky. IHIE, as its data steward, is vendor- and customer-agnostic and does not own any of the data in the INPC.
“IHIE manages the data and ensures that it is protected on behalf of our customers,” he said. “We have a customer-based governance committee to ensure data is used in the way in which customers approve. IHIE is responsible for the development and maintenance of products and services derived from the unique INPC data asset.
“While we are working intentionally to build and expand our relationship with state government, we believe many HIEs would benefit from expanding their service offerings to the market and building their base of revenue from fees paid in exchange for value.”
John Kansky, Indiana Health Information Exchange